We see Ingrid addressing Maaike and Maarten, her two children. She’s recalling one of the fondest memories they shared together. It’s a memory which clearly brings her joy, but at the same time we sense a sort of burden. An unspoken tragedy difficult to identify.

When she ends her story, it becomes clear why: Ingrid is suffering from young onset dementia. Whilst she’s still got her memory for the time being, she’s fully aware of what’s coming ahead.

At the end this radio-documentary viewers are invited to share own memories with their loved ones on 'imstillhere.be'.

Young onset dementia affects around 6.000 people in Flanders. Unfortunately, it remains a disease shrouded in taboo: dementia is still far too often associated with older people, by patients and doctors alike.

As a result, when young and active people encounter the symptoms for the first time, they are reluctant to go see a doctor. And when they eventually overcome their initial hesitations, they’re often confronted with incorrect diagnoses such as stress, burnouts or even depression. After all, it seems a bit far-fetched for a 55-year old to be struggling with dementia. Even for a professional.

As a result, it takes an average of no less than 4 years before patients receive the correct diagnosis. This means patients lose 4 years treating diseases they don’t have, instead of preparing for the journey ahead with Alzheimer’s.

That’s why the Alzheimer League Flanders wanted to break the taboo of young onset dementia.