Everyone affected by ADPKD could be said to be connected by those five letters. We made that connection come to life through the letters written by people affected in different ways by the disease.

Each participant was asked to write a letter that expressed their personal point of view on ADPKD. This could mean advice, reassurance, a message of hope… Whatever they thought a fellow patient should hear. By considering each person’s situation (their age, disease status, family situation etc) we were able to connect individuals together to create an extended narrative. The project was delivered entirely online, including via a mobile-optimised site, using simple, elegant navigation to emphasise the linear, connected nature of the story.

The website has only recently gone live, so metrics are not yet available.